https://www.facebook.com/events/1739734586248693
Lyme patients and patient advocates from around the United States will join together and call on Congress to take decisive action to address the out of control epidemic of Lyme disease and related tick-borne illnesses.
In less than 10 minutes, you can make a difference by making three phone calls to your representatives in Congress to express your concerns and call for action.
We are concerned about CDC’s failure to contain this epidemic, we are concerned about violations of federal laws and rules on open goverment, and we are concerned about conflicts of interest that contribute to the preventable suffering of thousands of patients.
CDC continues to provide preferential treatment to the Infectious Diseases Society of America (IDSA) by promoting the 2006 IDSA guidelines for Lyme disease, which are non compliant with federal standards, while withholding information from the public about the 2014 guidelines from ILADS, which are fully compliant.
Especially disturbing is that the CDC officials providing the preferential treatment are also members of IDSA, the organization receiving the preferential treatment—a serious conflict of interest.
Ook heel belangrijk voor Nederland, gezien onze te kort schietende CBO richtlijnen hierop zijn gebaseerd.
Als je wilt meedoen staat hieronder in de link hoe je dat precies kunt doen, er staat een tekst die je kunt opzeggen (of gebruik je eigen tekst), de telefoon nrs staan erbij, hoe meer mensen bellen des ter beter.
Je kunt ook een fam. lid of partner laten bellen mocht je zelf te ziek zijn:
https://www.change.org/p/the-us-senate- ... dium=email
PLEASE PLEASE PARTICIPATE!
Belangrijk nog om te zeggen:
Het gaat er hier over dat de richtlijnen zoals die in Amerika zijn opgesteld, moeten worden veranderd.
In het kielzog gaan de Nederlandse CBO richtlijnen mee.....
