Petitie Update

[Sproetje]

Vandaag kreeg ik opnieuw een bericht van Carl Tuttle:


Complaint filed with the Massachusetts Medical Board

Dec 13, 2014 — The following complaint has been registered with the Massachusetts Medical Board. Once again faulty/misleading Lyme disease antibody tests landed this sixteen year old in a psychiatric ward. The physician responsible for the misdiagnosis is regarded as an “expert” in Lyme disease. You or a loved one is only a tick bite away from this scenario.

The misdiagnosis resulted from faulty/misleading two tier serology as this boy’s Western blot did not meet the five out of ten band IgG criteria for positive results. In addition, this case shows that the “one-size-fits-all” IDSA treatment guideline was a complete failure.

(Please be advised that there is an error in the peer-reviewed article below; CORRECTION: “negative IgM and positive IgG for 4 bands” NOT 6 as verified by Dr Lantsman)


Letter to the Massachusetts Medical board:

Nov 12, 2014

Commonwealth of Massachusetts
Board of Registration in Medicine
200 Harvard Mill Square. Suite 330
Wakefield, MA 01880
Attn: Candace Lapidus Sloane, M.D., Chair, Physician Member

Dear Dr Candace Lapidus Sloane,

I would like to report the first case of a Lyme disease patient, a teenager, who was misdiagnosed by an “expert” as suffering from “pure psychiatric illnesses” and hospitalized in a psychiatric hospital, based on interpretation of certain questionable antibody test results. The correct diagnosis was finally established by finding Borrelia burgdorferi in the patient’s blood with 16S rDNA sequencing, as reported in the following peer-reviewed article.


DNA Sequencing Diagnosis of OFF-Season Spirochetemia with Low Bacterial Density en Borrelia bburgdorferi en Borrelia miyamotoi Infections
Sin Hang Lee, Jessica S Vigloitti, Veronica S Vigliotti, William Jondes, Thomas A. Moorcroft and Katherine Lantsman
Gepubliseerd online: 25 Juni 2014

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4139787/

Excerpt:

Patient #3 had initially flu-like symptoms in summer 2010, then developed bilateral knee swelling in February 2011. After a serology test was interpreted as positive for Lyme disease, the patient was treated with doxycycline for 28 days and the arthritis resolved. About 12 months after that treatment, the patient started having multiple physical and psychiatric symptoms, and eventually in the summer 2013 saw a Lyme disease expert who interpreted the ELISA test to be positive, but the Western blots negative because the Western blots showed negative IgM and positive IgG for 6 bands. Based on the expert’s opinion, the patient was hospitalized for pure psychiatric illnesses at a psychiatric hospital for 7 weeks in the fall of 2013. The patient also had multiple other health issues, including typical Bartonella rash, sweats, flushing, severe fatigue, migratory joint pains, nausea, stomach pain, insomnia and blurry vision. He did not attend school for one year 2013–2014. He was discharged in the fall of 2013 and was not diagnosed as a Lyme disease patient until February 2014 when the patient also had a positive C6 peptide B. Burgdorferi IgG/IgM 3. 46 Lyme Index (normal range < 0.91), in addition to DNA sequencing positive for B. burgdorferi.

I respectfully request that the qualification of this so-called expert be investigated because there may be other Lyme disease patients who have been mislabeled as psychiatric patients and hospitalized without proper treatment of the infectious agents, by the same expert whose name should be published and known to the patient community.

The Board may need to initiate its enquiry into the case by contacting Dr. Lee and Dr. Lantsman, the authors of the peer-reviewed article. The expert can certainly challenge the validity of the test published in the article.

Let me remind you of the Board of Registration in Medicine’s mission statement:

“The Board of Registration in Medicine’s mission is to ensure that only qualified physicians are licensed to practice in the Commonwealth of Massachusetts and that those physicians and health care institutions in which they practice provide to their patients a high standard of care, and support an environment that maximizes the high quality of health care in Massachusetts.”

As a Professor of Pediatrics I’m sure you will agree that the inability to properly diagnose Lyme disease can have life altering consequences as experienced in this young boy’s case. Your prompt attention to this matter is greatly appreciated.

Respectfully submitted,

Carl Tuttle
Hudson, NH 03051

[VerlorengezondheidM]

'The Canadian Lymewarriors'

Ticking Lyme Bomb in Canada. YOU are at RISK. Sign now!

Lees die reacties onderaan de petitie maar eens op je gemak door.

P.s.; hoelang blijven we nog volhouden dat Lyme en co infecties een zeldzame ziekte is in Nederland?

Bron: https://www.change.org/p/minister-petit ... n-plan-now

[VerlorengezondheidM]

Misschien zou de Minister VWS dat ook eens moeten doen die reacties van deze petities doorlezen en aansluitend de Film Lyme epidemie kijken....

[VerlorengezondheidM]

Deze petitie kan nog steeds ondertekend worden op deze site:

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

Als patiënten kunnen we dingen bereiken, we moeten ons laten horen, iedereen tekenen dus!

Josie

De petitie is nog niet afgesloten, dus teken en deel de petitie aub zoveel als mogelijk; niet alleen voor onszelf maar ook voor:

Our children and our children's future.

[VerlorengezondheidM]

False and Misleading Information about Lyme Disease (Propaganda)

August 1, 2016

World Health Organization
Avenue Appia 20
1211 Geneva 27
Switzerland
Attn: Ian Smith MD, Executive Director of the Director-General's Office

Dear Dr. Smith,

Dr. Sam Donta spent a career studying Lyme disease as a professor of medicine and Director of the Boston University Medical Campus Lyme Disease Center. I have attached a copy of his clinical notes in reference to my personal case of Lyme disease.

I would like to call attention to the Western blot lab results reported in his clinical notes. Positive results here in the United States require specific bands; two out of three IgM and five of ten IgG.

In contrast, China’s Western blot requires a single band (Band 41) for positive results:

A Study of the Technique of Western Blot for Diagnosis of Lyme Disease caused by Borrelia afzelii in China*

2013 Mar;26(3):190-200. doi: 10.3967/0895-3988.2013.03.006.
http://www.ncbi.nlm.nih.gov/pubmed/23425802

Band 41 as you know represents the antibody against the spirochete’s flagella. There are other spirochetal infections that might produce a positive response to band 41; Syphilis (Treponema pallidum) and periodontal pathogen spirochetes (Treponema denticola). These “other” spirochetes can be easily ruled out if there is a question of false positive Lyme results.

Dr. Donta has seen all family members in our household as we were all horribly sick living in this Lyme endemic region of New England. None of us tested positive for Lyme disease following the CDC’s strict criteria for positive lab test results. I have attached a copy of my wife’s Western blot for your review.

Western blot: https://www.dropbox.com/s/ppus0unm0j2oi ... t.pdf?dl=0

My wife by the way could barely walk up a flight of stairs without excruciating knee pain and we thought she might require knee replacement surgery. I’m happy to report that my wife’s knee pain has resolved completely after long term antibiotics of three year’s duration.

The point I would like to convey here is that had we not seen Dr. Donta, none of us would have been treated. This is not an isolated example! Thousands upon thousands of suffering Lyme patients are told they do not have Lyme disease and are not treated as a result of the strict testing criteria.

In addition to the strict test criteria, bands 31 and 34 were removed from the Western blot to facilitate vaccine development. Bands 31 (Outer surface protein A) and 34 (Outer surface protein B) are highly specific to Borrelia so a positive result to either of these two bands confirms infection yet the two most important indicators of infection are no longer offered through standard commercial tests.

The human Lyme vaccine was a failure while the two most significant Western blot bands have not been restored.

Int J Risk Saf Med. 2011;23(2):89-96. doi: 10.3233/JRS-2011-0527.
Neurological complications of vaccination with outer surface protein A (OspA).
Marks DH1. http://www.ncbi.nlm.nih.gov/pubmed/21673416

Dr. David Volkman (Lyme researcher) wrote a letter to Dr. Tom Frieden, Director of the CDC asking that the strict criteria for positive results be reevaluated. I have attached a copy of Dr. Volkman’s letter to this email. Dr. Volkman did not receive a response from the CDC.

Dr Volkman’s letter: https://www.dropbox.com/s/sl5x3gzguowpj ... n.doc?dl=0

“One way to stop an epidemic is to redefine it by narrowing the disease's diagnostic criteria so tightly that it's hard for any chronically ill Lyme patient to fit the profile and obtain insurance reimbursement.”

Dr Smith, I ask the following questions, “How long do we continue to turn a blind eye to the mishandling of Lyme disease here in the United States? Does the World Health Organization have any authority in questioning what has been wrongly established?”

A response to this inquiry is requested.

Sincerely,

Carl Tuttle
Hudson, NH

Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
Raphael B. Stricker and Lorraine Johnson
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3879353/

_________________

In summary: Lyme disease belongs in the same health threat category as AIDS, Zika and Ebloa but a handful of academics have controlled the narrative for the past three decades through editorial censorship and colluded to deny this life-altering/life-threatening infection by promoting an outdated simplistic viewpoint of a disease capable of ruining lives.

We are experiencing a runaway plague with unacceptable testing, inadequate treatment, lack of medical training and absolutely no disease control.

Those who have perpetuated this thirty year dogma (along with the editors who publish their propaganda) are responsible for the most shameful affair in the history of medicine. The mishandling of Lyme disease is a crime against humanity on a global scale.

Sincerely,

Carl Tuttle
Hudson, NH

REFERENCES:

1. Cardiac Tropism of Borrelia burgdorferi: An Autopsy Study of Sudden
Cardiac Death Associated with Lyme Carditis. (March 2016)
http://ajp.amjpathol.org/article/S0002-9440(16)00099-7/abstract

Excerpt:

“Fatal Lyme carditis caused by the spirochete Borrelia burgdorferi rarely is identified. Here, we describe the pathologic, immunohistochemical, and molecular findings of five case patients.”

2. CDC Case Study #1: Three Sudden Cardiac Deaths Associated with Lyme Carditis: http://www.cdc.gov/mmwr/preview/mmwrhtm ... mm6249a1_w

3. CDC Case Study #2: A case report of a 17-year old male with fatal Lyme carditis
http://www.cardiovascularpathology.com/ ... 54-8807(15)00025-3/abstract?rss=yes

4. Professor Neil Spector: Duke physician uses near-death experience to encourage patient self-advocacy
http://www.dukechronicle.com/articles/2 ... YlYnxtViko
Dr Neil Spector from Duke University required a heart transplant after his Lyme disease went undiagnosed for four years.

5. Nashua Mom in the 'Lyme Light' on Katie Couric Show
http://patch.com/new-hampshire/nashua/n ... ouric-show
Fifth-grade teacher Kelly Downing was paralyzed from the neck down and interviewed by Katie Couric.

6. Infection by Borrelia burgdorferi and cutaneous B-cell lymphoma (Cancer)
https://www.ncbi.nlm.nih.gov/pubmed/9331890

Specific DNA sequences of Borrelia burgdorferi were identified in cutaneous lesions from 9 patients (follicle center lymphoma: 3/20; immunocytoma: 3/4; marginal zone B-cell lymphoma: 2/20; diffuse large B-cell lymphoma: 1/6).

7. Application of Nanotrap technology for high sensitivity measurement of urinary outer surface protein A carboxyl-terminus domain in early stage Lyme borreliosis.
http://translational-medicine.biomedcen ... 015-0701-z
41 of 100 patients under surveillance for persistent LB in an endemic area were positive for urinary OspA protein after antibiotic treatment.

8. Culture evidence of Lyme disease in antibiotic treated patients living in the Southeast.
http://danielcameronmd.com/culture-evid ... southeast/
Rudenko and colleagues reported culture confirmation of chronic Lyme disease in 24 patients in North Carolina, Florida, and Georgia. All had undergone previous antibiotic treatment.

9. DNA sequencing diagnosis of off-season spirochetemia with low bacterial density in Borrelia burgdorferi and Borrelia miyamotoi infections.
https://www.ncbi.nlm.nih.gov/pubmed/24968274

Faulty/misleading antibody tests landed a sixteen year old male in a psychiatric ward when his lab results did not meet the CDC’s strict criteria for positive results. His Western blot had only four of the required five IgG bands. Subsequent DNA sequencing identified a spirochetemia in this patient’s blood so his psychiatric issues were a result of neurologic Lyme disease misdiagnosed by antiquated/misleading serology. This patient was previously treated with antibiotics.

10. Granulomatous hepatitis associated with chronic Borrelia burgdorferi infection: a case report
http://www.labome.org/research/Granulom ... eport.html
The patient had active, systemic Borrelia burgdorferi infection and consequent Lyme hepatitis, despite antibiotic therapy.

11. Scotty Shelton and Persistent Infection in Saginaw MN
https://www.change.org/p/the-us-senate- ... u/11685820
“Scotty's brain (cerebral cortex) was positive for Borrelia burgdorferi and Borrelia myamotoi, his testicle is positive for Bb. We are now testing other tissues. Seven years of antibiotics and 3.5 years of natural treatments (along with antibiotics) and he was highly highly positive.”

12. Congenital Transmission of Lyme/TBD
https://www.dropbox.com/s/z10em0szgpm8b ... 5.doc?dl=0

13. Wheelchair-Bound Girl Calls Blessing By Pope Francis ‘Most Precious Moment Of My Life’http://newyork.cbslocal.com/2015/09/24/pope-francis-blesses-girl-in-wheelchair/
NEW YORK (CBSNewYork) — A 12-year-old girl who has been confined to a wheelchair since being diagnosed with Lyme disease said meeting Pope Francis as he arrived in New York Thursday was “the most precious moment of my life.”

14. $1.8 billion to fight Zika: CDC moves to highest alert level
https://www.washingtonpost.com/news/pos ... ika-virus/

15. LYME SCI: Why persister cells matter with Lyme disease
https://www.lymedisease.org/lyme-sci-wh ... e-disease/

Bron

[Sproetje]

The researchers successfully cultivated Borrelia burgdorferi and Borrelia bissettii-like spirochete from these individuals. This is the “first recovery of live Borrelia burgdorferi sensu stricto from residents of southeastern United States,” writes Rudenko. “And, the first successful cultivation of live Borrelia bissettii-like strain from a resident of North America.”

Kun je Borrelia nu wel of niet op cultuur zetten na een antibiotica kuur?

Dr. Zhang zegt in zijn presentatie dat het bijna onmogelijk is.

https://www.reddit.com/r/Lyme/comments/ ... _possible/

Zou het zo zijn omdat hij samenwerkt met het CDC daardoor niet meer onafhankelijk kan werken?

[VerlorengezondheidM]

The researchers successfully cultivated Borrelia burgdorferi and Borrelia bissettii-like spirochete from these individuals. This is the “first recovery of live Borrelia burgdorferi sensu stricto from residents of southeastern United States,” writes Rudenko. “And, the first successful cultivation of live Borrelia bissettii-like strain from a resident of North America.”

Kun je Borrelia nu wel of niet op cultuur zetten na een antibiotica kuur?

Dat vroeg ik mij laatst ook al af.

Als je voor de antibiotica kuur positief test op de culture test denk ik dat dat wel zou kunnen maar hoe groot die kans is met z'on laag gevoelige test weet ik niet.

Als je voor de antibiotica kuur negatief test op de culture test zijn de kansen denk ik nog kleiner.

Dr. Zhang zegt in zijn presentatie dat het bijna onmogelijk is.

https://www.reddit.com/r/Lyme/comments/ ... _possible/

Zou het zo zijn omdat hij samenwerkt met het CDC daardoor niet meer onafhankelijk kan werken?

Ik vraag mij af of de W.H.O. wel onafhankelijk kan werken.

[Sproetje]

Soms denk ik wel dat het slim is van Dr. Zhang om ook met het CDC samen te gaan werken.
Het is eigenlijk een soort van prisoners dilemma

Wat dat laten groeien van borrelia in een petrischaaltje betreft, dat lijkt nog niet zo gemakkelijk als vaak wordt gezegd.

Hier een stukje van Lymenet Europe:

https://www.lymeneteurope.org/info/the- ... pirochetes

[VerlorengezondheidM]

Geweldige reactie van de Nederlandse Lyme warrior

Legalize Lyme Disease

Bron: https://www.change.org/p/president-trum ... me-disease

[VerlorengezondheidM]

Deze petitie kan nog steeds ondertekend worden op deze site:

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

Als patiënten kunnen we dingen bereiken, we moeten ons laten horen, iedereen tekenen dus!

Josie

We zitten bijna op 50.000, dus teken de petitie a.u.b., indien gewenst anoniem, alvast bedankt

VGM