Welkom bij het Lymeforum

Calling for a Congressional investigation of the CDC, IDSA...

by Carl Tuttle · 24,115 supporters


Petition Update: Next Steps

Carl Tuttle

Hudson, NH

Nov 9, 2014 — When the petition reaches 25,000 signatures I will be asking everyone around the country (and the globe) to call a specific legislator on one date (or multiple dates) in order to flood the phone circuits to this Senator/Representative’s office. A short phone script will be provided in order to insure that a united message is delivered. The initial legislator(s) selected will be those sponsoring Lyme bill HR4701 who already have a vested interest and knowledge of Lyme disease or its legislation. Additional legislators could be called throughout the month insuring a constant flow of activity. I will be sending registered mail to each legislator which will include a hardcopy of the petition; signature and comment file which has now grown to 344 pages.

More on HR4701:
http://chrissmith.house.gov/news/docume ... tID=392943

Please continue to promote this petition. Thank you for your continued support!

Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF

https://www.change.org/p/the-us-senate- ... a-and-aldf

-Carl Tuttle






Chris Smith


U.S. CONGRESSMAN CHRIS SMITH REPRESENTING NEW JERSEY'S 4TH DISTRICT

http://chrissmith.house.gov

Ik hoop dat er veel mensen ook uit Nederland deze petitie zullen tekenen.
En België ook natuurlijk
Eigenlijk alle Europese landen.

Iedereen kan tekenen, geen leeftijd aan gebonden.
Je kunt je naam eventueel weglaten als je dat liever doet.

Update:

Nov 17, 2014
Per the following link there appears to be four pages of patient complaints regarding faulty Lyme disease antibody testing and subsequent misdiagnosis.

MAUDE - Manufacturer and User Facility Device Experience
http://www.accessdata.fda.gov/scripts/c ... &pn=10&sc=


PS
De Maude database is van de FDA (food and drugadministration).
De Maude database gaat over fouten en klachten uit deze branche
Meer info:

http://www.accessdata.fda.gov/scripts/c ... Search.cfm

Carl Tuttle

Hudson, NH

Nov 21, 2014 — Now that the petition has reached 25,000 signatures (on my birthday no less!) a call blitz to the first Senator will be announced staring the week of Dec 1st since next week is a short week for Thanksgiving. A short phone script is being prepared to insure that a united message is delivered. Registered mail will be sent to each legislator which will include a hardcopy of the petition; signature and comment file (on CD) which has now grown to 344 pages. USPS tracking numbers will be posted to the petition.

Please be advised that Change.org automatically increases the signature goal so as not to lose any additional signatures/comments. We have met the original goal of 25,000 so it is now time to involve everyone in phase two of this mission.

Please continue to promote this petition!

Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF

Thank you, Carl Tuttle



https://malegislature.gov/Content/Docum ... Report.pdf

http://www.nbcwashington.com/news/healt ... 24524.html

http://chrissmith.house.gov/news/docume ... tID=252549

http://www.prohealth.com/library/showar ... ibid=16308


Congenital Transmission of Lyme: 28 Peer-Reviewed Studies:

(Seronegativity in Lyme borreliosis and Other Spirochetal Infections)
http://www.lymeinfo.net/medical/LDSeronegativity.pdf

Petition Update


Phase two of this initiative

Carl Tuttle Hudson, NH

Nov 25, 2014 — Now it is your turn to help move this initiative along.

Representative Chris Gibson’s phone: (voicemail is available in all locations so call 24x7)

Washington DC office (202) 225-5614
Kinderhook, NY office (518) 610-8133
Delhi, NY office (607) 746-9537
Kingston, NY office (845) 514-2322
Cooperstown, NY office (607) 282-4002
Ferndale, NY office (845) 747-9261

Please call Representative Chris Gibson on December 1st, 2nd and 3rd 2014 and leave the following one minute UNIFIED message:

My name is: _________ calling from: _________

I am calling Representative Gibson today respectfully requesting a congressional investigation of the CDC, IDSA and American Lyme Disease Foundation for the mishandling of Lyme disease.

The vast majority of Lyme patients are being misdiagnosed due to faulty and misleading antibody tests while the CDC continues to overlook abundant scientific evidence of chronic infection. We have been dealing with an antibiotic resistant superbug purposely concealed to promote vaccine development. Post-treatment Lyme disease syndrome is simply a fabricated medical condition disguising treatment failure.

It is time to expose the truth behind the deliberate mishandling of Lyme disease and focus on finding better treatment options for myself (or) my sick: (mother, father, daughter, son. relative, loved one, etc). Please support a congressional investigation into the CDC’s deliberate mismanagement of Lyme disease. Thank you!
___________________________________________

Registered mail has been sent to Representative Chris Gibson which included an introductory letter, hardcopy of the petition; signature and comment file (on CD)

USPS TRACKING NUMBER: 7014 2120 0003 5884 7592

Please continue to promote this petition!

Petition: Calling for a Congressional investigation of the CDC, IDSA and ALDF
https://www.change.org/petitions/the-u- ... a-and-aldf

Thank you,

Ik ga i.i.g. wel bellen, je kunt gewoon de tekst inspreken
En ik hoop dat er heel veel mensen gaan bellen. Het is niet moeilijk om te doen en je helpt mee

Moet daar nog een landennummer voor, of zijn de nummers tussen de haakjes al de landen/ staten nummers? Ik weet niet hoe dat werkt in de VS.

Hoi Joos, leuk dat je reageert.
Het is heel makkelijk:

Uitleg

Stap 1
Bekijk het nummer dat je wilt bellen. Dit is bijvoorbeeld 0123456789 (10 getallen).
Als je New-York, Kingston office gaat bellen heb je dus dit nummer: (845) 514-2322 (dat zijn 10 getallen).


Stap 2
Pak nu de landcode, en zet deze ervoor. De landcode van de Verenigde Staten is 001. Het telefoonnummer dat je moet bellen voor Kingston office is dan
001 845 514-2322

Ik zal voor de zekerheid nog even navragen, maar ik denk dat dit het is.

Ok, dus 001 is het landennummer, dan moet het lukken.

VERGETEN:

Je moet dan wel het oorspronkelijke nr. dwz in het geval van New-York, Kingston office: (845) 514-2322 het eerste cijfer weglaten, in dit geval dus de 8
Dan krijg je:

001 45 514-2322

Dat doe je bij al de andere nummers ook precies hetzelfde
Altijd het eerste nr. weglaten van het oorspronkelijke nummer dat je hebt gekregen en dan het landnummer ervoor zetten.

Voor heel amerika geldt hetzelfde landnummer.

Deze petitie kan nog steeds ondertekend worden op deze site:

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

Als patiënten kunnen we dingen bereiken, we moeten ons laten horen, iedereen tekenen dus!

Josie