Welkom bij het Lymeforum

John Caudwell
October 27 at 5:15am

First of all thank you so much for the concern shown to myself and to my family. As I have said before, you are all very united and compassionate in your suffering. I am determined to gain proper recognition for Lyme disease within the UK and hope that will then role out to the rest of the world.

Since starting my campaign 4 weeks ago I have done over 20 interviews for radio, press and TV and met with some of the world's top Lyme experts. As a result of this we seem to be gathering a real momentum within the media and I have left that momentum to gather whilst lobbying the Government, and starting the recruitment of a Chief Executive and a researcher to join me.

Very shortly I will be doing another round of interviews to talk about where my family are now with this insidious disease and the fact that 5 tested 5 positive became 9 tested 9 positive.

Many of you have offered help and I very much appreciate that but it is very difficult to keep track of especially because my memory is still Lyme fogged. Some of your offers for help have been extremely impressive and come through on Facebook, Messenger, Twitter and Email.

The best way of making sure that your interest to help is registered is buy sending a similar message to: lyme@caudwell.com

The next bit of what I want you to do I am going to put in a separate Facebook message so that it is not lost in this post. It is a request for any of you that can to do a specific piece of work for me to help with my lobbying.

Given that I am in Orlando, I am now off to Animal Kingdom - I'll be in touch later!

Thank you all,
John Caudwell

Mum With Lyme Disease Believes She Has Passed The Illness On To Her Husband And Children

John Caudwell
22 mins ·
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CAUDWELL CAMPAIGN LYME

Thank you all so much for your continued messages of support and your personal stories which of course whilst invoking tremendous sadness in me, also motivates me even more to try and help solve this problem. The only positive thing I can say about Lyme is that it seems to bring a unique sense of kindness and humanitarianism in everyone that suffers. There are so many desperate people, desperate families in so many countries and I am constantly getting asked ‘can’t you stir the pot for us?’

My strategy is very clear! I need to encourage the UK authorities to see the reality of ‪#‎Lyme‬. Chronic Lyme needs to be accepted as potentially the greatest health threat of our time and investigated accordingly. It needs to be tested for in a proven laboratory and treated according to the protocol of many highly experienced doctors who have achieved amazing results on people who would have otherwise been virtually written off.

I am sorry that I am not able to answer your mail. That would be impossible and would really distract me from the challenge that I have. One very experienced Lyme doctor gave me a 10% chance of convincing the UK authorities. Well, when I do convince them this will be a model that we can use for the rest of the world.

Update on my progress

Over the last 5 weeks, since 5 members of my family proved positive out of 5 tested, I have been building my knowledge up, talking to world leading doctors, treating my family and recruiting a team to help me with this challenge. Next week, I interview chief executives for the role and hopefully will find somebody who I believe is strong enough and skilful enough to help me change perceptions and protocols that will eventually rescue millions of chronically ill people from a dreadful existence.

Also, during that time, my families positive results increased to 10 out of 12 tested. My home is like a Lyme clinic but we are very optimistic of positive outcomes and without doubt my own health has already improved. My memory is still fairly poor but way better than it was 6 weeks ago. My burning brain and eyes are almost back to normal and my energy is returning. This of course is very interesting because if this continues then it ratifies the treatment that I have been having.

I haven’t yet spoken to the wonderful Lyme associations around the world, purely because of lack of time, needing to be more knowledgeable, putting all my energies into my family health and developing a world changing team.

I would love to meet with the various organisations soon in order to see how we can be more effective and united together.
I HAVE NO DOUBT THAT THIS WILL BE THE BIGGEST CHALLENGE OF MY LIFE BUT I DO BELIEVE THAT WE CAN CHANGE NHS POLICY, BEAT LYME AND SAVE THIS SUFFERING.

John Caudwell
3 uur ·
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I completed my Charity ride in Florida with an extreme level of tiredness but came back to the UK to GOOD NEWS!

We are beginning to win the war on ‪#‎lyme‬
(See article below)

Whilst it's way too little, way too late it is a start that must be accelerated!

I will keep pushing until the government understand the scale of the problem and the severity of the condition in many patients.

There is a long way to go but this is a good start and sooner than I expected.

I would like to thank mayor Boris Johnson and MP Bill Cash for their sympathetic ear and support.

Surge in acute cases of Lyme disease in Britain spurs ministers to act
Department of Health plans network of experts to support GPs and hospitals as concern grows about spread of potentially debilitating condition

Britain had a surge of cases this summer of Lyme disease, a tick-borne illness that in its most serious form can result in chronic fatigue, pain, confusion, depression-like symptoms and memory loss.

New figures show that after a two-year pause in the steady rise of cases, the number of acute cases – people who test positive and show symptoms of the disease – nearly doubled this summer, the peak season.

Public Health England also revealed that tests for the disease have increased five-fold in the past two months – though this is likely to be affected by publicity around the case of the billionaire John Caudwell and his family,who were diagnosed with the illness.

12 December 2015
Can billionaire John Caudwell's bombshell theory be right? Phone tycoon reveals ELEVEN of his family now have crippling Lyme disease and he believes it's passed on by other people NOT ticks

• Lyme disease can devastate vital organs, the brain and the immune system
• John Caudwell says it is 'one of the most dangerous illnesses to mankind'
• Two of his former partners and four of his children have been diagnosed
• He believes it isn't only passed by ticks, but also during pregnancy or sex

John Caudwell
1 uur ·
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# LYME TESTING

Many of you tell the same story:

● Many years of clinical symptoms.
● Constant misdiagnosis by GPs
● Constant visits to consultants with
Continual misdiagnosis
● If you are lucky, you eventually get a
Lyme test but it shows negative
(some of you even have several)
● You get tested at Armin labs in
Germany and as expected because of
your symptoms you test positive
● You take the results to the doctor and
he refuses to accept them
(Not approved)
● Yet again you feel hopelessly
distressed!
● If you are lucky enough or wealthy
enough to get treated properly you get
better.

I call upon PHE to examine the difference between UK tests and Armin to discover the most reliable test.

From my knowledge and experience this will Prove the Armin method and at last people will have a reliable test accepted by our doctors!

EITHER WAY I WANT ANSWERS!! AND I WILL MAKE SURE I GET THEM EVEN IF I HAVE TO DO THE RESEARCH MYSELF!

THE DAYS OF IGNORANCE NEGLECT FOR CHRONIC LYME SUFFERERS MUST AND WILL COME TO AN END!

I CAN'T RATIFY ARMIN LABS BUT I CAN SAY THE RESULTS AND THE SYMPTOMS MATCH IN ALL OF THE PATIENTS THAT I HAVE SEEN SO WITHOUT CONTRARY EVIDENCE I BELIEVE THEM TO BE BEST IN CLASS

VerlorengezondheidM schreef:In hoeverre wijken de testmethodes van Armin labs af van die van Infectolab, of zijn deze werkwijzen exact hetzelfde?

Josie schreef:

VerlorengezondheidM schreef:In hoeverre wijken de testmethodes van Armin labs af van die van Infectolab, of zijn deze werkwijzen exact hetzelfde?

Goeie vraag, ik weet het ook niet precies maar ze zijn wel echt anders.
De Lymespot Revised meet Interferon gamma en IL-2, deze test geeft info over de activiteit vd infectie.
De Elispot meet wat anders, maakt geen onderscheid tussen een actieve of niet-actieve infectie. Is ook geen echte LTT heb ik begrepen.
De tests vullen elkaar goed aan denk ik.

Josie