Prof. Willy Burgdorfer Talks About Lyme Disease
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At what point in time will our public health officials recognize the health crisis of Lyme disease in America? With over 300,000 new cases annually, Lyme now has an infection rate ten times the AIDS epidemic and twice as prevalent as breast cancer. Lyme disease is not limited to men who have sex with men or persons who inject drugs as described in your HIV Editorial so the potential risk for infection is unlimited and growing annually.
Patient testimony is describing a disease that is destroying lives, ending careers while leaving the patient in financial ruin and you have both received documentation of this testimony.
Untreated streptococcal pharyngitis can progress to rheumatic fever, causing irreversible heart damage. Untreated syphilis leads to progressive disability and dementia, and untreated HIV infection progresses to AIDS with significant disability and death. What happens to the patient with Lyme disease who goes months, years or decades before diagnosis because of a false negative serological test, missing erythema migrans (bulls-eye rash), misdiagnosis, etc.?
Post Treatment Lyme Disease Syndrome (PTLDS) after early treatment and untreated Lyme of months, years or decades are two entirely different disease states; the latter being ignored for three decades. Patients who have had a prolonged exposure to the pathogen are almost always incapacitated. The focus here in the U.S. has always been on the acute stage of disease after early treatment and that does not represent the entire patient population. Dr. Gary Wormser of New York Medical College who has been fixated on the acute stage of Lyme is the kingpin of this racketeering scheme to downplay the severity of Lyme disease and his junk science continues to be financed by the US Centers for Disease Control. “Funding: RO1 CK 000152 which appears to be an open checkbook.”
There are no public service announcements informing the public that you could become horribly disabled or die from Lyme disease.
It felt like the flu. It took 10 doctors, a year, and $60,000 to get an answer.
My family’s harrowing journey to get a diagnosis after we were bitten by ticks — and what it says about our health system.
'Based on more than a decade of research, I believe our medical system is structurally designed to marginalize and misdiagnose tick-borne disease patients.'
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